Carer Survey

Every two years Carers NSW surveys carers about a range of issues, including health and wellbeing, employment, finances, service access, and unmet needs. These surveys are an important source of information about carers, and help us to identify and advocate for what carers want and need.

Carers NSW 2016 Carer Survey – Main Report Released

We would like to thank all carers who took the time to complete the Carers NSW 2016 Carer Survey. Over 2,000 completed responses were received, making this the largest survey we have ever conducted. Over 80% of respondents were female and almost half were aged between 45 and 64 years. More than one quarter of carers had been in their role for more than 20 years, and almost half reported providing more than 70 hours of care per week.

The Main Report outlines the major findings in relation to carers’ wellbeing, employment, service access and social support, and provides a specific focus on former carers. The findings presented in this report will direct additional analysis of the data, as well as inform policy and advocacy work across Carers NSW.

Download the Main Report.

Download the Carer Survey Infographic.

Download the Carer Survey Infographic – Aboriginal and Torres Strait Islander carers.

Download the Carer Survey Infographic - CALD carers.

Download the Carer Survey Infographic – LGBTI carers.

Download the Carer Survey Infographic - Male carers.

If you have any questions about the Carers NSW 2016 Carer Survey, please contact the Research team on 02 9280 4744 or


40 Years of Carer Surveys in NSW – Report released

“In December, 1974, an application was made to the Australian National Advisory Committee, International Women’s Year, by the NSW Council on the Ageing, asking for a grant for a survey into the problems arising from the care of an aged person at home” (NSW Council on the Ageing, 1976).

This grant awarded to the NSW Council on the Ageing funded the first survey into the needs of carers in NSW. The resulting report, Dedication, was published in 1976 and highlighted the need to provide carers with support, particularly in relation to household tasks, respite, and financial assistance. That same year, a Carers Committee was formed within the Council on the Ageing NSW, marking the beginnings of the organisation now known as Carers NSW.

Over the 40 years since Dedication was published, Carers NSW has strived to understand the needs and lived experiences of carers across NSW in order to advocate on their behalf and provide direct supports. An important aspect of this work has included conducting research to inform the organisation’s strategic planning and systemic advocacy.

Since 2002, Carers NSW has undertaken periodic surveys of carers across NSW to inform different aspects of the organisation’s work. 40 Years of Carer Surveys in NSW documents the findings of these surveys, from the 1976 “Dedication” report, through to the most recent Carers NSW 2016 Carer Survey. This historical perspective of surveys highlights shifting organisational priorities over this time, while also revealing that several important aspects of carers’ experiences and needs remain somewhat unchanged, even after 40 years.

Download the report.




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Carers NSW acknowledges the Traditional Custodians of the land, Elders past and present and all Aboriginal people.