Research

Contributing to carer research is an important part of our role as a peak body representing carers’ needs and interests.

Carers NSW is committed to undertaking and supporting high quality research that builds the evidence base about what works to support carers. 

We conduct internal research and evaluation projects and partner with a range of external researchers to conduct, promote and disseminate carer research. We only support research that is ethically conducted and specifically relevant to carers.

Carers NSW 2018 Carer Survey

The Carers NSW 2018 Carer Survey: Summary report was released on Friday 12 October 2018 at the Carers NSW 2018 Biennial Conference.

Contact our Research Team

The Carers NSW Research Team can advise on:

  • Research conducted, supported and promoted by Carers NSW
  • Opportunities to promote external research projects to carers
  • Potential formal research partnerships
  • Facts and figures about carers, based on our own data collection and other key data sources (more information below)

To contact our Research Team, phone 1800 242 636 or email research@carersnsw.org.au.

Participate in carer research

Carers can express their interest in participating in research by signing up to the Carers NSW Research Community, a network of carers living in NSW, aged 18 years and over who receive a monthly email listing current research opportunities. All projects promoted by Carers NSW are vetted to ensure that they are ethical, of high quality and relevant to carers. Participation in any research opportunities is entirely voluntary.

Keep up with the latest carer research

Research Snapshot

The Carers NSW Research Snapshot is a regular publication that overviews the latest national and international research publications relating to carers. Monthly editions for 2018 are available below. Please note that from July 2018 the Research Snapshot will be published quarterly.

To receive the quarterly Research Snapshot via email, subscribe to the Carers NSW eBulletin.

Carer Research and Knowledge Exchange Network (CAREN)

CAREN is a freely accessible, online knowledge exchange resource for anyone who requires carer-related knowledge. CAREN is based on a scoping review of carer-related research and knowledge funded by the National Institute for Health Research School for Social care Research (NIHR SSCR). Carers NSW CEO, Elena Katrakis, is the Deputy Chair of the international management team.

International Journal of Care and Caring

The International Journal of Care and Caring is a new multidisciplinary journal designed to advance scholarship and debate in the important and expanding field of care and caring. Multidisciplinary and international in scope, it publishes high quality contributions on care, caring and carers from all regions of the world. IJCC has a broad focus, covering care and caring for people of any age who have long-term conditions, disabilities or frailties, or who are seriously ill or near the end of life. It explores the economic, organisational, political, social, legal, familial, transnational and ethical settings in which this care occurs.

Carers NSW Biennial Conference

The Carers NSW Biennial Conference provides an opportunity for delegates to explore best practice, innovation, policy, research and initiatives in carer support. It brings together professionals from a broad range of areas including:

  • health
  • disability
  • community and welfare services
  • transport
  • employment
  • education
  • research
  • policy
  • corporate and business

The Carers NSW 2018 Biennial Conference Caring: Yesterday, Today, Tomorrow will be held on Thursday 11 and Friday 12 October 2018 at the Novotel Sydney Olympic Park. The conference is proudly funded by the NSW Government.

Carer data

The Research Team frequently receives enquiries and requests from researchers, service providers and members of the community about carer statistics. We are more than happy to advise (our contact information is above), however the following key sources of carer data are freely available and are a great place to start for carers and other stakeholders examining the carer evidence base:

See our Policy Publications and Research Publications pages for other published data on carers. If there is a particular topic of interest that does not already appear in these publications, we welcome your suggestions for future publications.

  • Carer Survey

    Every two years Carers NSW conducts a statewide survey of carers to better understand what carers in NSW want and need.
  • Projects and publications

    Carers NSW supports a range of research projects and publications on the results of completed research projects conducted by or in partnership with Carers NSW.

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Carers NSW acknowledges the Traditional Custodians of the land, Elders past and present and all Aboriginal people.