Carer Survey

Every two years Carers NSW conducts a comprehensive survey to better understand what carers want and need.

Carers NSW 2020 National Carer Survey - Summary report launched!

In 2020 the Carers NSW Carer Survey was conducted nationally for the first time, with the support of the National Carer Network. A summary report was launched on Sunday 11 October 2020 to mark the beginning of National Carers Week.

The 2020 National Carer Survey: Summary report provides an overview of high-level national findings from the Survey regarding caring relationships, carers’ experiences accessing services, carer health and wellbeing, and carer employment. Some state and territory comparisons are highlighted throughout to indicate national variation, with further comparative analysis between the states and territories and between various cohorts of carers to be completed in future.

A series of cohort-specific fact sheets to raise awareness of the particular characteristics and challenges of diverse groups of carers is also available for download below.

For more information about the 2020 National Carer Survey, please contact the Carers NSW Research Team at or on 02 9280 4744.

Young Carer Research Project report released

Following on from a successful qualitative sub-study conducted alongside the Carers NSW 2018 Carer Survey with hard-to-reach culturally and linguistically diverse (CALD) carers,  young carers aged 25 years and under were identified as a priority group for additional data collection to complement the results of the 2020 National Carer Survey. 

On 15 July 2020 Carers NSW released the summary report on findings from research conducted with 28 young carers aged 16-25 from across NSW. During the peak of the COVID-19 lockdown, Carers NSW conducted online interviews and focus groups with 28 young carers to better understand their experiences and support needs and to learn how to engage with them more effectively. The summary report released today includes powerful stories of young people caring for loved ones while juggling study, work, family and social responsibilities.

A toolkit conveying learnings from the project to promote best practice young carer engagement is currently in development and will be released by November 2020.

For more information about the Young Carer Research Project, please contact the Carers NSW Research Team at or on 02 9280 4744.

Carers NSW 2018 Carer Survey: Summary Report

The Carers NSW 2018 Carer Survey was conducted between May and July 2018 and built on the strengths of our previous surveys in order to reach more carers and collect valuable new data about carers' needs and experiences. A summary report was launched on 12 October 2018.

About the Carers NSW Carer Survey

The biennial Carers NSW Carer Survey collects information about carers in NSW to provide an evidence base that informs the organisation’s direction, support, and systemic advocacy for all carers across NSW. The Carer Survey is a great way for carers to provide feedback about what is and isn’t working in their caring role, and in the various service systems they access. This information helps Carers NSW advocate for better support for carers across NSW. Carers NSW receives funding from the NSW Department of Communities and Justice to conduct the Carer Survey.

In December 1974, the NSW Council on the Ageing conducted the first survey in to the needs of carers in NSW. The resulting report, Dedication, was published in 1976 and led to the establishment of a Carers Committee, marking the beginnings of Carers NSW.

40 years of carer surveys

In 2016, for the 40th anniversary of Carers NSW, the 40 years of carer surveys in NSW report was published to overview the history of carer research in NSW. Since 2002, Carers NSW has undertaken periodic surveys of carers across NSW to inform different aspects of the organisation’s work. Since 2014, the Carer Survey has sought university ethics clearance and been developed by a Steering Committee involving carer researchers and sector and Government representatives.

Carers NSW 2016 Carer Survey

Over 2,000 completed responses were received, making this the largest survey we have ever conducted. Over 80% of respondents were female and almost half were aged between 45 and 64 years. More than one quarter of carers had been in their role for more than 20 years, and almost half reported providing more than 70 hours of care per week.

Carers NSW 2014 Carer Survey

In 2014 the Carer Survey received over 2,000 responses and was the first Carers NSW survey to seek and receive University Human Research Ethics approval and to be developed under the guidance of an expert Survey Reference Committee, made up of leading carer researchers. 



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Carers NSW acknowledges the Traditional Custodians of the land, Elders past and present and all Aboriginal people.