Adults caring for a sibling with disability

In 2017 Carers NSW conducted research with adults caring for a sibling with disability to raise awareness about their experiences.

Who are adult sibling carers?

Adult sibling carers are individuals over the age of 18 who provide care and support to their sibling who lives with disability. Many adult sibling carers have cared for their sibling since they were young, but may not have identified as a ‘young carer’ or accessed support.

Adult sibling carer research

The Carers NSW Adult Sibling Project was conducted in 2017 in consultation with adult siblings of people with intellectual disability. The project aimed to raise awareness about the lived-experience of adult siblings and to develop supports and resources to meet their needs.

Useful services

Carer Gateway – 1800 422 737 (Monday to Friday). Access to supports and services for carers.

Siblings Australia – Information and support specifically for siblings.