Carer Survey

Every two years Carers NSW conducts a comprehensive survey to better understand what carers want and need.

About the Carers NSW 2020 National Carer Survey

The Carers NSW 2020 National Carer Survey is now open until 30 June 2020. Make a difference for carers across the country and have your say today!

Developed by Carers NSW in collaboration with researchers from five universities and the National Network of Carer Associations, the Carers NSW 2020 National Carer Survey, is now online.

Every two years Carers NSW conducts a survey to ask carers about their experiences and find out what supports they need. In 2020 for the first time this will be a national survey, providing the opportunity to increase our number of responses and find out more about what is on the minds of carers nationally.

The data gathered in this research will help to advocate for carers, influence policy makers, and plan for service delivery into the future. 

We encourage carers to complete the online version where possible, but we understand that not everyone is able to do so. A paper copy and reply paid envelope has been included for all Carers NSW members with every copy of the April/May edition of Carers News, and carers can order paper copies through this online form

To download a printable version of this survey, please review the Participant Information and Consent Form first and then click here to open the questionnaire in PDF. The return address for printed surveys is: Carers NSW, PO Box 785, North Sydney NSW 2059.

For more information about the Carer Survey, please contact the Research Team at or on 02 9280 4744.

Have your say

The Carers NSW Carer Survey is one of the major ways in which Carers NSW and our partners and stakeholders improve our understanding of caring and carers' lives. This knowledge helps us to advocate for the things that matter to carers and raise awareness about current issues in caring.

The Carer Survey also helps us to understand the needs of specific groups of carers, including carers from different cultural backgrounds. It also highlights the challenges of different caring roles, for example caring for someone with a mental health condition, or the experience of being an older carer. 

What do we hope to learn in 2020?

The 2020 National Carer Survey will build on the strengths of the previous Carers NSW Carer Surveys.

Some questions are the same or similar in every survey, such as questions about the caring relationship, access to services and health and wellbeing. Each Carer Survey also contains sections that focus on particular topics of interest that we’d like to go into in greater depth. This year we want to find out more about a number of new areas, including:

  • Carers’ experiences with accessing disability, health, mental health, and aged care and carer support services
  • Whether accessing various types of services for the person they care for have freed carers up to participate more in paid work, community life and social relationships
  • The need for financial support and the financial situation of carers
  • Carers’ experiences and needs regarding respite care.The intensity of the caring role and how often carers have the opportunity to take a break

All of these topics will provide us with new information that will strengthen our advocacy for, and support of, carers in NSW and across Australia.

We invite all carers to have their say and share their experiences with us. We are particularly interested in hearing from more male carers, young carers, Aboriginal and Torres Strait Islander carers, culturally and linguistically diverse carers, and lesbian, gay, bisexual, trans/gender diverse, intersex or queer (LGBTIQ+) carers. 

Carers NSW 2018 Carer Survey: Summary Report

The Carers NSW 2018 Carer Survey was conducted between May and July 2018 and built on the strengths of our previous surveys in order to reach more carers and collect valuable new data about carers' needs and experiences. A summary report was launched on 12 October 2018 by the Carers NSW CEO, Elena Katrakis, and more in depth analysis is still ongoing.

About the Carers NSW Carer Survey

The biennial Carers NSW Carer Survey collects information about carers in NSW to provide an evidence base that informs the organisation’s direction, support, and systemic advocacy for all carers across NSW. The Carer Survey is a great way for carers to provide feedback about what is and isn’t working in their caring role, and in the various service systems they access. This information helps Carers NSW advocate for better support for carers across NSW. Carers NSW receives funding from the NSW Department of Communities and Justice to conduct the Carer Survey.

In December 1974, the NSW Council on the Ageing conducted the first survey in to the needs of carers in NSW. The resulting report, Dedication, was published in 1976 and led to the establishment of a Carers Committee, marking the beginnings of Carers NSW.

In 2016, for the 40th anniversary of Carers NSW, the 40 years of carer surveys in NSW report was published to overview the history of carer research in NSW. Since 2002, Carers NSW has undertaken periodic surveys of carers across NSW to inform different aspects of the organisation’s work. Since 2014, the Carer Survey has sought university ethics clearance and been developed by a Steering Committee involving carer researchers and sector and Government representatives.

Carers NSW 2016 Carer Survey

Over 2,000 completed responses were received, making this the largest survey we have ever conducted. Over 80% of respondents were female and almost half were aged between 45 and 64 years. More than one quarter of carers had been in their role for more than 20 years, and almost half reported providing more than 70 hours of care per week.

Carers NSW 2014 Carer Survey

In 2014 the Carer Survey received over 2,000 responses and was the first Carers NSW survey to seek and receive University Human Research Ethics approval and to be developed under the guidance of an expert Survey Reference Committee, made up of leading carer researchers. 



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Carers NSW acknowledges the Traditional Custodians of the land, Elders past and present and all Aboriginal people.