Carer Survey

Every two years Carers NSW surveys carers about a range of issues, including health and wellbeing, employment, finances, service access, and unmet needs. These surveys are an important source of information about carers, and help us to identify and advocate for what carers want and need.

We want to hear from you! 2016 Carer Survey, have your say

Building on the success of the 2014 survey, our Research team has been working hard to plan for the 2016 Carer Survey with the assistance of some university researchers who have generously donated their time. 

We hope that once again, carers from across New South Wales will support this vital piece of research. We value the views and opinions of every carer – this is an important opportunity for you to have your say and inform our work.

The survey is available online and if you would like more information about the Carer Survey, or our research in general, please contact the Research Team on 02 9280 4744 or research@carersnsw.org.au

- Carer Survey 2016 - Have your say

Carers NSW 2014 Carer Survey

In 2014, nearly 1700 carers from across New South Wales completed the survey. 84% of respondents were female, and just over half were aged between 45 and 64 years. One in five people who completed the survey were from culturally diverse backgrounds. 

Survey results highlighted the variety of caring situations that exist in NSW. Carers reported caring for people with a wide range of conditions, illnesses, and disabilities, with many reporting multiple diagnoses. In addition, one in four carers indicated that they were caring for more than one person. The survey provided information about the complexity of many individual caring situations, particularly in terms of carers’ interactions with multiple service providers, therapists, or clinicians, and managing multiple treatments.

Importantly, the 2014 survey clearly showed the extensive nature of some caring roles, with over 25% of care recipients requiring over 70 hours of care per week. The survey also highlighted the significant personal consequences of providing so many hours of care, including poorer wellbeing, increased need for support, and difficulty in accessing services. It is a major challenge for any service system to provide affordable and accessible support to carers with such significant time demands, but our survey results emphasise just how important this is.

The results also showed several positive trends. For example, the number of carers who stated that they started caring because they wanted to was more than double those who felt they had no choice. The positive value of caring for a loved one was consistently reported to be greater than the negative impacts of caring. It is important to highlight these beneficial aspects of caring relationships, rather than focusing only on negative impacts. Caring should not be seen as something to be endured and we want to acknowledge the value of carers in the community, particularly in terms of the positive influence they can have within their individual caring relationships.

How the results have been used

We have used the 2014 survey findings to inform our policy, advocacy and research work over the last year and a half.

As well as publishing a complete report on the survey and a series of factsheets which are available below, survey findings have informed several policy submissions and funding applications.

We have also presented selected results at the Carers NSW Biennial Conference, the Australian National Carer Conference, the International Carers Conference, the Australian Social Policy Conference, and the Australian Association of Gerontology Conference. A number of journal articles are also being prepared based on the survey results.

Download the Carers NSW 2014 Carer Survey Main Report here.

Download the infographic of main findings here.


Carers NSW 2014 Carer Survey Factsheets

  1. Balancing Work and Care
  2. Workplace Practices
  3. Usefulness of Services
  4. Quality of Services
  5. CALD Carers
  6. Employment and Wellbeing
  7. Male and Female Carers
  8. Regional Carers
  9. Young carers and young adult carers

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Carers NSW acknowledges the Traditional Custodians of the land, Elders past and present and all Aboriginal people.