We would like to thank all carers who took the time to complete the Carers NSW 2016 Carer Survey. Over 2000 completed responses were received, making this the largest survey we have ever conducted.
We are in the process of analysing the results and plan to release initial findings in October 2016.
In the meantime, if you have any questions about the Carers NSW 2016 Carer Survey please contact the Research Team on 02 9280 4744 or firstname.lastname@example.org.
In 2014, nearly 1700 carers from across New South Wales completed the survey. 84% of respondents were female, and just over half were aged between 45 and 64 years. One in five people who completed the survey were from culturally diverse backgrounds.
Survey results highlighted the variety of caring situations that exist in NSW. Carers reported caring for people with a wide range of conditions, illnesses, and disabilities, with many reporting multiple diagnoses. In addition, one in four carers indicated that they were caring for more than one person. The survey provided information about the complexity of many individual caring situations, particularly in terms of carers’ interactions with multiple service providers, therapists, or clinicians, and managing multiple treatments.
Importantly, the 2014 survey clearly showed the extensive nature of some caring roles, with over 25% of care recipients requiring over 70 hours of care per week. The survey also highlighted the significant personal consequences of providing so many hours of care, including poorer wellbeing, increased need for support, and difficulty in accessing services. It is a major challenge for any service system to provide affordable and accessible support to carers with such significant time demands, but our survey results emphasise just how important this is.
The results also showed several positive trends. For example, the number of carers who stated that they started caring because they wanted to was more than double those who felt they had no choice. The positive value of caring for a loved one was consistently reported to be greater than the negative impacts of caring. It is important to highlight these beneficial aspects of caring relationships, rather than focusing only on negative impacts. Caring should not be seen as something to be endured and we want to acknowledge the value of carers in the community, particularly in terms of the positive influence they can have within their individual caring relationships.
We have used the 2014 survey findings to inform our policy, advocacy and research work over the last year and a half.
As well as publishing a complete report on the survey and a series of factsheets which are available below, survey findings have informed several policy submissions and funding applications.
We have also presented selected results at the Carers NSW Biennial Conference, the Australian National Carer Conference, the International Carers Conference, the Australian Social Policy Conference, and the Australian Association of Gerontology Conference. A number of journal articles are also being prepared based on the survey results.
You can access the results of our previous surveys using the links below.
Carers NSW acknowledges the Traditional Custodians of the land, Elders past and present and all Aboriginal people.