Projects and publications

Carers NSW supports a range of research projects and publications on the results of completed research projects conducted by or in partnership with Carers NSW.

Current projects

Carers NSW is currently supporting the following research projects. Please contact the researchers directly if you would like more information about the projects or how you can be involved.


Carer recognition and care relationships: Developing a framework for carer recognition


  • Are you caring for an older person who is receiving a Home Care Package?
  • Do you feel listened to and respected by the service provider?
  • Are you concerned that the recent changes to Consumer Directed Care with a focus on the individual receiving care might reduce the focus on carers and the care relationship?


This project is being conducted as a research collaboration between Carers NSW and a research team from the University of Wollongong and will investigate the impact that Consumer Directed Care in the Home Care Package program has on carers. The project will develop a Framework for Carer Recognition in the Home Care Packages program.

You are invited to take part in a Carer Action Group (CAG). The CAG will meet face to face in the Carers NSW office in Sydney, approximately 6 times over a period of up to 18 months. The CAG meetings will commence in March 2017 and may take up to two hours each. 

If you are interested in participating but don’t think you can attend all meetings due to your caring responsibilities, it will be possible to link into the CAG meetings via teleconference.

If you would like more information, please contact Ms Cathy Duncan, University of Wollongong, on 0429 018 183 or email at or Tim Broady at Carers NSW on 02 9280 4744 or email at


Study of carers of people with heart failure

The International Alliance of Carer Organizations (IACO) has received funding from Novartis to conduct a four-nation study of carers of persons with heart failure. The four nations are the United States, Canada, United Kingdom and Australia.

This online survey will take 15 minutes to complete and all responses are confidential and completely secure.

The results of the survey will be published in a report in September 2017 and shared by partner countries to help influence support and programs for carers.

Visit the International Alliance of Carer Organizations website to take the survey.


Parenting a child with a developmental disability

Researchers at the University of Newcastle are conducting a survey exploring the experience of being a parent of a child with a developmental disability. In particular, they are interested in how cultural factors may or may not affect this experience. 

If you are interested in participating, please visit The University of Newcastle website where you can read more about the study before deciding if you would like to participate. 


Young stroke survivors and carers

The Florey Institute of Neuroscience and Mental Health has established a database of people who are interested in participating in research projects. These research projects inform treatments, therapy, policies, and support programs, with the aim of improving recovery outcomes.

Young stroke survivors and carers of young survivors are invited to express their interest in future research participation. If you would like to be contacted for the possibility of research participation, please complete this Expression of Interest form and return it to the contact details on the form.


Carer experiences of mental health services, knowledge and help seeking for people with intellectual disabilities

Carers with an adult child with intellectual disabilities are invited to participate in a national online survey about their experiences with services to address mental health concerns and challenging behaviours, general knowledge of mental health issues, and help seeking attitudes.

If you are interested in participating, you can access the survey at via the Macquarie University website. For more information, contact Joyce Man on


Autism Clinic for Translational Research Register

The Brain and Mind Research Institute carries out studies focused on the diagnosis and treatment of Autism Spectrum Disorders. These studies involve a variety of activities including diagnostic assessments, group and individual therapy, and medical treatments like Oxytocin. If you are interested in learning more or participating in a study, please visit the website and consider filling in the survey to become part of the research register, so you can be contacted when a study is being conducted that you might be suitable for.

Completed projects

The following publications are the results of completed research projects conducted by or in partnership with Carers NSW.

For more information about any of these publications, please contact the Research Team on or 02 9280 4744.

Research snapshots

The monthly Research Snapshot provides an overview of recent research publications related to the work of Carers NSW.

Click here to read the latest Research Snapshot.

Click here to view the archive.



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Carers NSW acknowledges the Traditional Custodians of the land, Elders past and present and all Aboriginal people.